“I am finding the lockdown annoying because I cannot do any of my hobbies and see my friends, but I understand that it is to protect me.”
Thirteen-year-old Adam from Weymouth has a rare muscle-wasting disease called Duchenne Muscular Dystrophy. Yet, through the support from Corfe Mullen based charity Julia’s House, he is able to live a fulfilling life through his various hobbies.
However, since the outbreak of the Covid-19 virus, Adam has been shielding that due to his condition and his vulnerability to infection.
He said: “In school time I am keeping myself occupied by following my daily school timetable and doing the work that has been set for me, I am also baking, making Lego and watching Star Wars on Disney + and also playing on my Xbox.
“Because I am shielding this means I cannot even leave the house to go for a daily walk, which I am finding really hard.”
There’s currently no cure for DMD, a life-limiting condition, but this doesn’t stop Adam living life to its fullest. He loves football, is a black belt in Taekwondo and regularly attends Scouts.
Julia’s House is now providing support to Adam and his family via regular video calls.
“I am missing going to watch AFC Bournemouth play and getting to see the players as they arrive for matches and playing my power chair football for AFCB Warriors and Cheltenham All-stars.
“I am also missing my Scouts and taekwondo. Both AFCB Warriors and Weymouth South Scouts have been doing things weekly via Zoom, which has really helped me.
“I had a video chat and quiz with Nurse Nat, which was entertaining. Nurse Nat has also kindly collected my tablets from the chemist for me and when delivering them I had a nice conversation with her through my door.”
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