A ‘SASSY Walk’ is set to take place in memory of an 18-year-old who passed away from a rare disease.

Annabelle Hover lost her battle with Batten Disease in January earlier this year.

Batten disease is an inherited metabolic disorder that can cause decline and death.

Read more: Ringwood family on experiences with juvenile Batten Disease

Now, in her honour, family and friends of Annabelle have organised a memory walk on September 28.

The walk will begin at Christ Church, Creekmoor and will follow the Castleman Trailway for 18 miles until they reach The Elm Tree in Ringwood.

The event aims to raise £7,000 that will go towards the Batten Fighters Forever charity that continue to support other families and their children with the disease.

Batten Fighters Forever has so far supported over thirty children with equipment and adaptations to aid their care.

Annabelle’s brother has also been diagnosed with CLN3.

Mum, Lisa Hover said: “In August 2016, after rapidly losing her sight, followed by years bouncing from one hospital to another to find an explanation, Annabelle was diagnosed with CLN3 Juvenile Batten Disease - one form of a rare inherited condition affecting the nervous system.

"Beginning in childhood, it causes rapid vision loss, seizures, thinking difficulties, loss of speech, loss of movement and premature death.”